Welcome to QCDD

(Queens Council on Development Disabilities)

Dear Members:

 
If you would like to sign-up to receive email updates and alerts please send an email to [email protected] with “QCDD Email” in the email subject.

 

2023 Five Borough Virtual Legislative Breakfast

Friday, March 3, 2023 from 10am to 12pm
Register here:

Join Zoom Meeting
https://qsac.zoom.us/j/84736243648?pwd=VmJCMGcydnhBMndsUWswek5TdWx2dz09

Meeting ID: 847 3624 3648
Passcode: 737535
One tap mobile
+16469313860,,84736243648# US
+19294362866,,84736243648# US (New York) 

Next QCDD Full Council Meeting is February 6th at 9:30am
Topics
    • S:US – Services for the Underserved
    • URBAN Farms
    • NYS Budget Review by IAC

Join Zoom Meeting
https://qsac.zoom.us/j/86346550823?pwd=UXp1V3VTamFIamVQQUYrUU80bFBXUT09

Next Adult Transition Services Meeting is January 18th at 9:30am

Join Zoom Meeting https://queenscp-org.zoom.us/j/8686618096?pwd=SGwyK2liQjdVWkJoa0tTVnRHOGpUUT09

Meeting ID: 868 661 8096
Passcode: 8115164

 

Past Events

The QDCC Self-Direction/Self-Determination Committee would like to invite you to our next meeting on Friday, January 13, 2023 at 10am.  Please read the description of the session and register in order to receive the zoom link.
 
“Suggestion Box:  Share stories of gaps and rough spots”
At this session we will be collecting stories of our encounters with problems in the Self-Direction system.  After the meeting we will send these along to OPWDD leadership to help guide their future improvements.
 
1- Gaps, Needs that you could not get filled.  Obstacles that you were not able to overcome.
2- Rough spots.  Things that were difficult to get done, where the system put up obstacles that
    you were able to overcome.
3- Your story of how changes to the housing subsidy process have affected you/your loved one
    negatively.
 
These stories should be as specific as possible.  Ideally include the contact info of the person who encountered the gap of or difficulty, or someone who is willing to speak on their behalf.  We understand that is not always possible.
 
* Example of a less useful story:  I heard from one of the other parents that their FI refused
   reimbursement.
* Example of more useful story:  My name is Jim Karpe, [email protected], and my FI, ISS-
   NY refused to reimburse the final session of a monthly JCC community class in early 2022,
   because they did not have a description of the class.  They had reimbursed multiple sessions
   prior to that.  By that time they gave me the refusal, the class was no longer offered, and the
   description had been pulled down.  
 
https://us02web.zoom.us/meeting/register/tZwvf-ioqDIpHdxP07dUfCyU_LtHU5rTfgBU
 
https://us02web.zoom.us/meeting/register/tZwvf-ioqDIpHdxP07dUfCyU_LtHU5rTfgBU
 
Hope to see you next week.
 
Best,
Marieta
 
https://www.unitingdisabledindividuals.com/
 
 
https://smile.amazon.com/?ref_=smi_ge_switch_cust

 

Date: January 9, 2023 – QCDD Monthly Meeting

Meeting Recording and chat transcript: https://qsac.zoom.us/rec/play/OlmFs0L9RofoKT8oNGYOF-RwYY0fy66JmjAqPRLPVzoIFMLii61kriQilhPpgOyiGFZNtzNt3C2smFgr.yq-a09Pj9YC_f5gV?continueMode=true

 

Date: December 5, 2022 – QCDD Monthly Meeting

Meeting Recording and chat transcript: https://qsac.zoom.us/rec/share/sZdTndnw-rL8pcsaSyCLOXkcLPxA6m-0DThoAhwkB-GScKbWIygv0UmOSVlBR3IF.hdmEiGEN3_I2cTmx

 

Thank you for joining us at the Queens Family Support Conference and Resource Fair!

You can view photos from the event at the following link below…
 

Congratulations to Kerbanoo D’Rozario, winner of the Beverly Berger Award, pictured above with Lisa Veglia, QCDD Chairperson and CEO of QSAC.

Date: November 7, 2022 – QCDD Monthly Meeting
 

Meeting Recording and chat transcript: https://qsac.zoom.us/rec/share/7GfO0FwQkTWbaI_ynjrVBM8wL8SQHyOV5GtQ504jI0K1C7RG3Kchl75MPlsnGCiN.qwUDUtxjTWuA7mSl

Click to view the brochure in English / Spanish / Mandarin.

Please share this with your colleagues, neighbors, family, and friends.
 
 

The IAC Board or Directors invites you to celebrate Tom McAlvanah’s retirement on October 27. 2022, 6:00 – 10:00 pm at the beautiful 583 Park Avenue. It will be a fun night with a cocktail hour, a full dinner, an open bar, and many great memories to shore!

We are recognizing Tom’s retirement as the Executive Director of the IAC since 2017 along with over 45 years of service and leadership in the field of intellectual and Developmental Disabilities.

 

Thank you for joining us at the 2022 Virtual 5 Borough Legislative Breakfast

As mentioned during the breakfast, below are the links to the one-click action items. In case you were not able to complete it during the breakfast we ask you to take a few minutes to complete the two forms today. We only have a couple of weeks before the state budget is set for final passage. 
 
The first link is a letter to Governor Hochul. We’re asking her to make some needed changes that we need to happen to ensure that the 11% benefits the children in our 4410 and 853 schools.
 
The second link is a letter to members of the NYS Assembly and NYS Senate asking for their support in investing in New Yorkers with intellectual and developmental disabilities. 
 
Governor Hochul Link –  t.ly/jGo9
 
NYS Assembly & NYS Senate Link –  t.ly/Dqj3
 
Please share this with your colleagues, neighbors, family, and friends.
 

Date: June 6, 2022 – QCDD Monthly Meeting

 

Meeting recording and chat transcript: https://qsac.zoom.us/rec/share/PzZIJeVIBlxriW7xDGO82k8tUG8NQSE0Td7zmmYj_oXtrWXmcbOqUE-f5Ac7bdYN.niu7e1U7yQngqOWr

Access Passcode: $d1apv05

Items/Materials Discussed:

Aging and DD Presentation Presentation

 

Date: May 2, 2022 – QCDD Monthly Meeting

Meeting recording and chat transcript: https://qsac.zoom.us/rec/share/97M2dKe-BNgMsfDg0aPpVYJ8CO4sKtRQ4ne8h0rSVmcQ_ntpZlAat3Jknpe0kpPo.R21Z4OlRnD3elb8T

Access Passcode: k!Y&5J33

 

Date: April 4, 2022 – QCDD Monthly Meeting

Meeting recording and chat transcript:
https://qsac.zoom.us/rec/share/Y6x5rDcRLsRy53vz2C7zOArM6Kiodb3R46FlAR1DUol9B556EkUZONtH-s9SkKg8.NE0nt55NIXUQN0wY

Access Passcode: .7C8Aar.

 

Date: Feb 17, 2022 – Family and Support Committee Meeting

 
Meeting Recording:
 

Access Passcode: bxGn1%.U

 

Date: Feb 7, 2022 – QCDD Monthly Meeting

Meeting Recording:
https://qsac.zoom.us/rec/share/Of3hLiOjXMgzv-7BanjeSoSqflz-FzLqs5mThfUpXv-5sbQ-GK5MtUlpnMrVHME7.MaX2cj1t8e0Q3n4x

Access Passcode: r3AEEe^V

 

Date: Jan 3, 2022 – QCDD Monthly Meeting

Meeting Recording:
https://qsac.zoom.us/rec/share/nT9vLiyfFmIjHhLbfeCRaFyjHFjYdsUpJVr-940GF1gp9BLSv-IGKi6A22qanoQx.XZACXcGwpTaMXRlo

Access Passcode: y9c7v4^H

Chat Transcript: Click Here

Items/Materials discussed:

AMAP ADM
https://opwdd.ny.gov/adm-2021-06-allowance-transfer-approved-medication-administration-personnel-amap-certifications
Recording for Required Survey and Attestation Webinar https://opwdd.ny.gov/american-rescue-plan-funding-fmap

 

Topic: QCDD Monthly Meeting

Date: Dec 6, 2021 

Meeting Recording:
https://qsac.zoom.us/rec/share/_1qRZjErOAxcMZyA_wTKE5hTsSTclLvS90yUWzXm4ldjdeTcraGeHRbRBUkhwuMr.AC6vsAasSmWMjjeC

Access Passcode: TeKi3N$$

Items/Materials discussed

COVID-19 UPDATES

https://opwdd.ny.gov/coronavirus-guidance

COVID-19 Information

https://covid19vaccine.health.ny.gov/

Emergency Preparedness and Response for Home and Community Based Waivers

https://www.medicaid.gov/resources-for-states/disaster-response-toolkit/home-community-based-services-public-health-emergencies/emergency-preparedness-and-response-for-home-and-community-based-hcbs-1915c-waivers/index.html

https://opwdd.ny.gov/federal-medical-assistance-percentage-fmap-funding

OPWDD by the numbers

https://opwdd.ny.gov/data

OPWDD Strategic Planning

https://opwdd.ny.gov/strategic-planning

OPWDD FAQ

https://opwdd.ny.gov/system/files/documents/2021/09/9.24.21-faq-mandatory-face-coverings.pdf

Revised Protocols for Personnel in Clinical and Direct Care Settings to Return to Work Following COVID-19 Exposure or Infection

https://opwdd.ny.gov/system/files/documents/2021/10/10.15.21opwdd-updated-return-to-work-guidance.pdf

We would like to thank all of our presenters and participants at the FSS Conference!

Please click here for the 2021 Queens FSS Conference page to watch each of the presentations online. 

The Queens FSS Conference – 10/26 & 10/27

Tuesday: 10/26/2021

Welcome and Introduction from the QCDD Leadership

Delia Tucker, Director, Region 4, OPWDD
Tom McAlvanah, Executive Director of the IAC (InterAgency Council)

9:00am – 10:00am

Employment and Job Placement for Individuals with I/DD

Steve Towler and Wayne Thomas from AHRC NYC, Hudson River Services and Krista Simeone from GHO

10:30am – 12:00am

OPWDD Eligibility, Enrollment and the Front Door

Presenters from OPWDD, Eric Magwood and Soreth Mitchell, and representatives from the CCOs Peter Coleman and Dorothy Wohl

12:30pm – 2:30pm

In-Home Therapy – The session will inform families how to access home attendant, occupational therapy, physical therapy, and speech services.

Rachel Plakstis, Director of Patient Relations, from Amerikids

—

Wednesday: 10/27/2021

Self-Direction Panel – Learn the Why and How of setting up a self-directed program for your child, at any age. You will get pointers from fellow-parents and knowledgeable experts, and there will be plenty of time to get your questions answered.

Jim Karpe, QCDD Parent Chairperson; Theresa Muga, Parent; Alan Kulchinsky, Parent and CEO of ISS-NY; Linda Schellenberger, SD specialist at Center for Family Support; Kevin Martinez, Support Broker at QSAC; Robert Johnsen, SD specialist at OPWDD.

10:00am – 11:30am

Education Advocacy for children ages 3 to 21

Katherine Hoy from AHRC, Director of Advocacy Services, and Ellen McHugh, Parent Information and Support

12:00pm – 1:45pm

Day Services – Learn about options for Day Programs after your child turns 21.

Wini Schiff from IAC, Beth Altmann, 811Q Transition Team Leader, and Pam Gaynor, Transition Coordinator/Job Developer

2:00pm – 3:30pm

COVID-19 Updates

Fred Wetzel, leader in the I/DD community for decades will be providing updates on COVID-19

4:00pm – 5:30pm

Language Interpretation Available:

As we do every year, we will provide Family Support Conference participants with language interpretation. Spanish and Mandarin will be the two languages available. 

When you log into your preferred Zoom session you will need to click the “interpretation” button that will appear as a globe along the bottom of the screen. There you will be able to choose either Mandarin or Spanish.

Cómo lo hacemos todos los años, proporcionaremos interpretación de idiomas a los participantes de la Conferencia de Apoyo Familiar. El Español y Mandarin seran los dos idiomas disponibles.

Cuando inicie la sesión en Zoom, deberá hacer clic en el botón que dice “interpretation” que aparecerá como un globo en la parte inferior de la pantalla. Alli podra elegir Mandarin o Español.

語言翻譯：

與過往一樣，我們將為家庭支持會議的參與者提供語言翻譯。我們將提供西班牙語和普通話翻譯。

當您登錄到Zoom會話時，您需要單擊“interpretation” (解釋) 按鈕，該按鈕將在屏幕底部顯示為地球。在那裡您可以選擇普通話或西班牙語。

 

 

 

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Click here to view June 7th Full Council Meeting Zoom session online.

Access Passcode: [email protected]

—

Click here to view May 3rd Full Council Meeting Zoom session online.

Access Passcode: 9Vos22=+

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Click here to view April 5th Full Council Meeting Zoom session online.

Access Passcode: 34?coL.H

 

 

Informational Town Hall Meetings:
 
Please see below information about three important Town Halls that took place on April 15th (Education), April 19th (transition to adult services) and April 22nd (final NYS Budget).
 
Also, click here for the Final 2021/22 NYS Budget Comparison Chart (4/8/21).o view the February

 

 

Thursday April 15 @ 7 PM

Why do those with the most needs get the least?

Once again our children and our teachers were ignored by New York State.

They got nothing to close the salary gap between public school teachers and our teachers even though our schools are part of the public school system -supplying for the schools cannot.

We WILL NO longer stand for this discriminatory treatment of Our children and educators.

Help us make the change!

 

 

 

Town Halls

Monday April 19 @ 7 PM

Moving from

School To Adult Services

What Do You Need to Do?

What are Adult Services?

A forum to hear from those who help on the transition and those who have made it safely to the other side

REGISTER NOW: Click Here

Thursday April 22, 7 PM

Budget Passed

What’s in, What’s Out

The answers supplied by

Sue Constantino*, Wini Schiff*, Nick Capoletti*

 

*Susan Constantino, President/CEO at Cerebral Palsy Association of New York State
*Wini Schiff, Associate Executive Director of Legislative Affairs, IAC (Inter Agency Council)
*Nick Capoletti, CEO, LIFEPlan CCO

 

 

The Virtual 2021 Citywide Legislative Breakfast was recently held on March 5th.

Click here to view the Zoom session online.

Access Passcode: %2ruEL!w

 

Click here to view the February 1st QCDD Council Meeting Zoom Session online.

Access Passcode: +CbgZ3Ba

 
Topics
    1. NYS Budget Review, IAC
    2. Stress Management

Click here to view workshop videos from the 2020 Virtual Queens Family Support Conference.

Click here to view the 2021 NYC Local Services Plan. 

Click here for the “Housing for People with I/DD ” presentation by John Maltby, Co-Director, NYC Housing Resource Center from the November 2nd Full QCDD Meeting.

 

 
 
View the presentation from the August 3rd, 2020 council meeting below:

Topic – Learning more about Wrap-Around services

Gerry Dohrenwend, CEO Cerebral Palsy of Ulster County will lead us through a discussion on innovative housing options.

Wrap-around services is a pilot program in which a traditional service provider supports an individual who wishes to live in a non-certified setting. Broad brush, the pilot program:

    1. Identifies an individual who wants to try this alternative.
    2. Matches them with mentors, staff members who will be the main contacts through the process of change.
    3. Uses CommHab hours to teach skills and habits needed for living more independently. For the pilot, this has taken one-year, on average.
    4. Moves them into their own house or apartment, with mentors coming to the new home on a daily basis and available on-call 24/7.

The experience has been that the on-call usage is initially very high, and then diminishes to almost nothing by the one-year anniversary of the move in. The pilot program moved 80 people.

 

Who We Are

The Queens Council on Developmental Disabilities is a group of professionals, parents, and advocates concerned about people with developmental disabilities living in Queens. The Council is authorized by Mental Hygiene Law to advise local and state government on service development and local priorities in regards to city and state resource allocations.

The mission of the Queens Council is to advise, inform, pioneer, identify needs and problems and to work toward their resolution.

The meetings of the Council and its committees provide a forum for discussion about situations which impact on the individuals with developmental disabilities and on the service systems.

The Council’s work often leads to positive changes in the service delivery system providing services to individuals with developmental disabilities.

The Council consists of several committees focused on addressing unmet needs of Queens residents with developmental disabilities.

The Council is charged with assisting and advocating for individuals with developmental disabilities and their families.